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Now Hiring: LiveLikeLou Program and Engagement Director


Program and Engagement Director

The LiveLikeLou Foundation is a national nonprofit organization committed to the cause of Amyotrophic Lateral Sclerosis (ALS) and our purpose to leave ALS better than we found it. We do this work in honor of our namesake, baseball Hall of Famer, and Luckiest Man Lou Gehrig, and the more than 16,000 people living with this 100% fatal disease each day across North America.

There are three parts to the LiveLikeLou mission:

  • Raising awareness for the cause of ALS through meaningful philanthropic partnerships, including Lou Gehrig’s Fraternity, Phi Delta Theta, with 170,000 living members, 14,000 undergraduates on nearly 200 college campuses, and our growing communities of support through ALS families, ALS researchers, and industry partners.
  • Supporting ALS research to find treatments or a cure by attracting and retaining ALS researchers and encouraging novel and pre-clinical scientific collaborations through our partnership grants, career development awards, and emerging ALS researchers’ collaboration and learning events.
  • Supporting ALS patients and their families by complementing other patient care organizations with unique offerings such as our nationwide volunteer service programs, Iron Horse Scholarships, and partnership with Hope Loves Company camps for children of ALS families.

The LiveLikeLou Foundation seeks a collaborative, self-starter whose primary responsibility is to manage projects and programs to advance our mission to leave ALS better than we found it. Reporting to the LiveLikeLou Foundation Executive Director, the Program and Engagement Director serves as a liaison to volunteers, ALS families, the scientific research community, and members of Phi Delta Theta Fraternity.

The LiveLikeLou Foundation was established in 2018 after experiencing success with its grassroots efforts in western Pennsylvania to honor its namesake, Lou Gehrig, and advance research and support of those impacted by Lou Gehrig’s disease (ALS). Founded by Neil and Suzanne Alexander, Neil – like Lou Gehrig – was a member of Phi Delta Theta Fraternity and both men courageously lived with ALS. 


  • Play a critical role in understanding, engaging with, and influencing many audiences including volunteers, ALS families, donors, researchers, and others
  • Lead administration of LiveLikeLou programs to meet short- and long-term goals including:
    • Scientific Research Committee
      • Coordinate meetings and take minutes
      • Develop content featuring LiveLikeLou scientific researchers for use in communications
      • Facilitate events including periodic virtual research forums and an in-person forum held every other year
    • Iron Horse Scholarship Selection Committee
      • Manage applicants, tracking, committee selection, communication, and engagement for the Iron Horse Scholarship program
      • Develop content about scholarship recipients for use in communications
      • Coordinate ongoing engagement of student scholarship recipients
    • Lou Gehrig Day (in partnership with Major League Baseball and Phi Delta Theta Fraternity)
      • Event coordination and communication
    • Iron Phi program support
      • This program for members of Phi Delta Theta Fraternity, ALS advocates, and friends of Phi Delt, challenges individuals to raise $1,000 and complete an athletic event of their choice; provide support, grow the audience, and provide engagement and communications assistance to the Senior Vice President of Growth, Engagement, and Philanthropy in facilitating the program
    • Phi Delta Theta philanthropy event support
      • Undergraduate chapters and alumni clubs host a number of events throughout the year to benefit the LiveLikeLou Foundation; serve as a liaison for branding and coordinating events to maximize impact and funds raised
    • ALS family support
      • Facilitate involvement with industry partner Hope Loves Company in collaboration with the LiveLikeLou Program Administrator to achieve measurable goals for grant funding:
        • Grow support of ALS families from 160 served to 250
        • Timely communication with ALS families and volunteers
        • Volunteer recruitment, engagement, communication, and reporting (Phi Delta Theta undergraduate chapters, members, and alumni)
  • Develop, conduct, and communicate outreach and engagement strategies with internal and external stakeholders
    • Content for social media, email, and direct mail
    • Impact stories
    • Volunteer highlights
    • Donor highlights
  • Ensure a positive volunteer experience for those involved in LiveLikeLou programs
    • Assess organizational needs and how volunteers may support them
    • Institute program policies and procedures (recruitment, application, assessment, documenting volunteer hours, orientation/training, etc.)
  • Complete data entry in information systems (Bloomerang and/or Salesforce CRM) as necessary
  • Oversee, monitor, and develop metrics and tracking for timely and accurate reporting
  • Anticipate growth opportunities and trends related to LiveLikeLou’s programs
  • Manage program budget revenue and expenditures
  • Assist the Executive Director in coordinating materials for board and committee meetings


  • Bachelor’s degree
  • Five or more years related experience preferably within the following fields:
    • Health promotion/health education
    • Nonprofit
    • Volunteer management
  • Strong project management skills
  • Excellent written and oral communication skills
  • Ability to work well with all levels of management and volunteers, health professionals, scientists, patients, and families
  • Proven ability to successfully work remotely and support staff and volunteers in a remote environment
  • Proficient computer skills:
    • Microsoft Office
    • Fundraising CRM/database; Bloomerang and Salesforce experience preferred
    • Asana (or other project management tool)
    • MailChimp (or other email management tool)
  • Occasional travel and/or weekend/evening program support necessary


  • Salary will be determined depending on the candidate’s background and experience.
  • Phi Delta Theta offers an excellent benefits package including retirement planning


  • This is a full-time position based remotely with opportunities to work from the Phi Delta Theta General Headquarters in Oxford, Ohio
  • Must have ability to initiate and manage distanced communications/events through Zoom
  • Prolonged periods of sitting at a desk and working at a computer


Interested candidates should provide a cover letter and resume to Human Resources Specialist Cynthia Buresh (cburesh@phideltatheta.org) by February 11.